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The Ospedale Pediatrico Bambino Gesù has a lot of experience in healthcare management at home.
Both hemodialysis and peritoneal dialyses can be provided at the young patient's home.
This way children needing dialysis can stay in their own homes surrounded by family, go to school regularly, and fit the dialyses treatments in moments when they don't have any other activities scheduled like the evening or the early hours of the night. The Ospedale Bambino Gesù is a recognized Regional Center for Paediatric Dialysis and has been providing home dialysis for the past 15 years.
The hospital carefully trains the families of children who have to do dialysis ensuring that the treatments will be carried out safely and correctly, and how to handle any problems that may arise. The hospital helps families to start the home dialyses and then monitors the progress of the treatment.
Home Enteral Feeds and Parenteral Nutrition
Pediatric research-based guidelines reveal that the following conditions may require Home Parenteral Nutrition:
- acute primary or secondary intestinal, functional or anatomical failure;
- any condition where the intestine must rest completely;
- the impossibility to provide full nutritional requirements enterally or orally that guarantee proper development.
For over ten years, the Department of Gastroenterology at OPBG has operated a Home Artificial Nutrition Center, recognized by the Ragione Lazio as a Regional Pediatric Coordination Center. During this time, the center has developed 30 programs on Enteral Feeds through the Department of Clinical Nutrition, and 40 programs in Home Parenteral Nutrition for the following conditions: short bowel syndrome, AIDS, protracted diarrhea, chronic intestinal pseudo-obstruction, and neuroblastoma.
Home Healthcare Management for Children with HIV and Immune Deficiency
Since 1995, the OPBG has offered Healthcare Management at Home for children with HIV living in the Lazio Region. In addition to the specified treatment, the OPBG provides medical staff and nurse practitioners to carry out home parenteral nutrition and enteral feed therapies, palliative care, and algology treatments (medical treatment for pain), and also provides medication and medical supplies.
From the results gathered, it is important to note a significant improvement in the psychological state of many children, some of which were able to return to school.
Home Healthcare Management for Children with Terminal Cancer
The OPBG began healthcare management at home for children with terminal cancer in 1999. After an initial assessment, a dedicated multidisciplinary medical team (two physicians, two nurses, a psychologist, a religious counselor, and if necessary other specialists) regularly monitors the child at home, performing transfusions, inserting catheters, administering algology treatments, and anything else to ensure the comfort of the patient.
The OPBG also provides medication and medical supplies for treatment
The service guarantees round-the-clock availability of physicians and nurses everyday, including holidays. Furthermore, a Listening Center, located at the Rome facility, is connected online with the patient's home.
Home Healthcare Management for Patients with Chronic Respiratory Failure/Insufficiency
For over 10 years the OPBG Departments of Emergency Medicine at the Rome and Palidoro facilities have provided home assistance to patients with chronic respiratory failure/insufficiency who require mechanical ventilation via a tracheostomy and have previously been hospitalized in one of the OPBG Departments of Emergency Medicine.
ICT Monitoring of Patients with Chronic Conditions Discharged from the Department of Emergency Medicine
In the year 2000, the OPBG Department of Emergency Medicine began to assist patients with chronic conditions at home using Information and Communications Technology (ICT) to monitor their respiratory functions.
If the general conditions of the patient get worse, indicated by a signal emitted from the monitor, it is possible to change the treatment therapy in order to avoid unnecessary trips and stays in the hospital.
Long-Distance ICT Monitoring of Electrocardiography Tracing via Mobile Phone
The Ospedale Pediatrico Bambino Gesù carried out a long-distance ICT monitoring of electrocardiography tracing in patients with heart disease. The study showed how long-distance monitoring can be used to carry out immediate diagnoses by providing, where necessary, clinical information and thereby avoid unnecessary hospitalization. Patients and families expressed a high level of satisfaction.
The possibility of receiving an immediate medical consult with a specialist from the hospital substantially reduces fears tied to heart disease.